InfoGenia is a new team of genetic counselors and clinical geneticists, the first in Spain, aimed at providing genetic information to the public.
Great improvements in diagnostic technologies, leading to an increasingly large number of available genetic tests, require a specialised genetic counseling team in order to take care of families with heritable disorders. InfoGenia ensures the provision of integrated and multidisciplinary genetic counseling. With that goal, this company is made of professionals of different fields within Genetics, who work in close collaboration with the medical team in charge of the patient and referred the case.
Commitment with the patient and his doctor are a priority for Infogenia. This is why we want our genetic counseling sessions to take place in the referring doctor’s office, making this easy for the patient and for the rest of medical group in charge. Our sessions can be approximately 1 hour long, in order to analyze in depth the family history, the types of inheritance, the causes of the disorder, the medical options for management and treatment, as well as the reproductive options available in order to minimize the occurrence or recurrence risk of a genetic disorder. The team will provide a report which should include the main points of information and discussion with the patient, as well as the recommendations for follow-up to the referring doctor.
InfoGenia provides personalized counseling leading to a better multidisciplinary management following several procedures:
The Infogenia Counselors facilitate access to social and educational ressources, including patients and families support groups, in order to provide a global approach in our care.
The main objective of InfoGenia is to provide the needed information regarding hereditary disorders and genetic risks, in order to make decisions and choose options appropriate to their needs, circumstances, values and beliefs.
An important task of InfoGenia is to provide support to people affected by genetic disorders.
This is done through referrals to the social services, patients support groups, and other organisations.